An International Community

Membership & Local Support

Get Involved

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.  Please see our Constitution for further details.

 

All fully subscribed country members with their own constituted PWS Association pay an annual subscription fee based on the number of families in their membership.  The subscription year runs from 1 January to 31 December.

 

How do you become a member of IPWSO?  Click here

 

Your Membership Stories

Find out more about the stories, challenges and plans of PWS associations around the world all working for the same cause to bring support, services, help and awareness of PWS in their country.

PWS Malaysia

PWS Thailand

Local Support

Each country's registered PWS Association appoints Parent and Professional Delegates to be their representatives.  When applicable, a Caregiver Delegate  is also appointed. 

If you wish to contact the delegate representative of any member list below; please contact us

Member Countries

Member countries are subscribed members with voting rights.  Click the links to visit the local member website or social pages. All delegates can be contacted for help. To get in touch with delegates or for additional contact, help or support please let us know here.

Associate Member Countries

Associate Member Countries have professional and/or parent contacts who are working with people with PWS.  All delegates can be contacted for help. If you wish to speak with a local representative please contact us here

Albania

Algeria

Argentina - SPINE Foundation

Armenia

Australia 

Bahrain

Bangladesh

Belarus

Bolivia

Botswana

Boznia Herzegovina

Bulgaria

China

Costa Rica

Croatia

Cuba

Dominican Republic

Ecuador

Egypt

El Salvador

Georgia

Guatemala

Honduras

Hong Kong​​​​​

Panama

Paraguay

Peru

Philippines

Portugal

Puerto Rico

Qatar

Russia Federation

Rwanda

Saudi Arabia

Singapore

Slovakia

Slovenia

South Korea

Tunisia

Turkey

Uganda

Ukraine

Uruguay

USA - Ontario PWSA

Uzbekistan

Venezuela

Vietnam

Yemen

Iceland

Indonesia

Iran

Jamaica

Jordan

Kazakhistan

Kenya

Kosovo

Kuwait

Latvia

Lebanon

Libya

Lithuania

Macedonia

Malta

Moldavia

Morocco

Nepal

Nicaragua

Nigeria

Oman, Sultanate of

Palestine Territory

Pakistan

Further information:

> Become a member

> What is PWS

> Treatment

> Clinical Features

> Guidance for families

> Medical Care & Research

> Residential Caregivers

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IPWSO

Salisbury House
Station Road
Cambridge CB1 2LA
UK

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Registered as a charity in England & Wales, charity no. 1182873